LGBTIQA+ people and cancer

Body image, gender and cancer

Overview

Changes to your body from cancer and its treatment can affect your confidence and sense of identity.

Common changes include hair loss, removal of a body part, surgical scars and bowel changes.

Everyone responds differently to body changes, but there are ways to help you adjust.

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Cancer and its treatment can change the way you look. This can affect how you feel about yourself (body image), regardless of sexual orientation, gender or sex characteristics. Even if other people can’t see the changes, they may still affect your body image.

This section discusses some common physical changes to appearance after treatment. These may also affect how you feel about sex and intimacy. The changes you experience will depend on the type of cancer and treatment you have. Some changes may be permanent, while others may improve over time.

Changes to your body can also affect your confidence, self-esteem and sense of identity. You may feel less attractive, socialise less, or feel disconnected from your community. In some cases, body changes may help your body feel more aligned with your identity.

Gender-affirming hormone therapies

Some cancers grow in response to hormones such as oestrogen and testosterone. These are called hormone-dependent cancers because the hormones signal cancer cells to grow. If you have a hormone-dependent cancer and are taking gender-affirming hormones, your doctor may talk with you about adjusting your hormone treatment. This can be difficult, especially if it affects how you look. Changes in your appearance may trigger gender dysphoria and affect your wellbeing.

If you feel anxious, talk to your doctor or call QLife on 1800 184 527.

Removal of a body part

Surgery to treat some types of cancer may mean removing a part of the body that affects how you look. After surgery, you may choose to live with your new body shape, wear a prosthesis or have a reconstruction. For some people, the surgery can affirm their gender. Only you can decide what feels right for you. Examples of body changes that people may experience include:

Breast


Breast cancer treatment may include breast-conserving surgery (removing part of a breast) or a mastectomy (removing one or both breasts). Having a mastectomy is different from top surgery.

After a mastectomy, you may choose to have a breast reconstruction or “go flat”. Some people who go flat choose to have a tattoo to cover scars or express themselves. Your decision may depend on whether the surgery helps your body better reflect your gender. Your cancer care team may talk to you about reconstruction, but the choice is yours. For more information on body image and gender identity after breast cancer surgery, visit Breast Cancer Network Australia.

Ovaries


Removal of the ovaries can affect how you experience sexual intimacy. This can often be managed with menopausal hormone therapy.

Uterus (hysterectomy)


Most people can still have orgasms as the clitoris and labia remain and control much of sexual sensation. However, orgasms may feel different.

Parts of the vulva


Surgery for vulvar cancer may remove part or all of the labia and, in some cases, the clitoris. This can affect your sense of identity, confidence and sexual pleasure. A fulfilling sex life is still possible, but it may take time to adapt. Talk to your doctor; they may refer you to a sexual health physician.

Testicle


Some people who have had a testicle removed may have less confidence and feel less sexually desirable. For cisgender men, the loss of a testicle may make them feel less masculine. Some people adjust quickly to having one testicle, while others find that it takes some time. If you’re self-conscious about how your scrotum looks, you may want to consider having an artificial testicle (called a prosthesis) inserted.

Trans women or non-binary people with testicles may also have a testicle removed for cancer. For some, this could affirm their gender; for others, it could feel distressing.

Prostate


During surgery, the tubes from the testicles are sealed and the prostate and the small glands called seminal vesicles are removed. This means semen is no longer ejaculated during orgasm. The pleasure from rubbing or stimulating the prostate during anal sex will also be lost. This may also affect erectile function. Talk to your doctor about ways to manage these changes.

Shortening or removal of the penis


After prostate cancer treatment, your penis may be a bit shorter (only by about 1–2 cm) or be a different shape. After treatment for cancer of the penis, all or part of the penis may be removed (partial or total penectomy). If the size of your penis is affected, you may avoid intimacy for fear of rejection. Your cancer care team can recommend a range of methods to change how the penis looks. For more information, visit the Prostate Cancer Foundation of Australia to download their booklet Understanding Prostate Cancer for LGBTIQA+ People.

Loss of hair from the head and body

Hair loss or hair thinning is a common side effect of some cancer treatments. It’s usually temporary. If you experience hair loss, you may have a range of different emotions such as anger, anxiety and feeling low or depressed. Hair loss can make you feel self-conscious about your appearance and be a constant reminder that you have cancer.

For some LGBTIQA+ people, head and body hair can be an important part of how they express their sexual orientation and gender. It can be a way of signalling that they have rejected gendered expectations of how they should look, or beards or long hair may help affirm their identity. Losing hair because of cancer treatment can challenge this expression of identity and self-image. For others, short hair after treatment may make them feel more visible as an LGBTIQA+ person.

People manage hair loss in different ways. You may choose to wear a wig, scarf or hat, or leave your head uncovered. Some people shave their head before treatment starts so they feel in control of the hair loss.

Find out more about hair loss and cancer.

Body wise, the most obvious thing that has changed is my hair. So, I guess, the way I present is a lot more obviously lesbian at the moment.

Ellen Lesbian, cancer of the uterus

Weight changes

Some cancer treatments may cause you to lose weight (body fat or muscle). This may be because you lose your appetite, or you have taste changes or trouble swallowing. Some medicines (e.g. steroids or androgen deprivation therapy) may cause you to put on weight.

Everyone responds differently to weight changes. Your reaction may depend on your age or how important your appearance is to you. For some, their changed body shape may feel more affirming, but others may feel less comfortable about their body after changes to their weight.

Bowel changes

Chemotherapy and radiation therapy can irritate the lining of the bowel and rectum. Symptoms may include passing smaller, more frequent bowel movements (stools, also called faeces or poo), needing to get to the toilet more quickly, blood in the stool, or feeling that you can’t completely empty the bowel.

These changes may mean that you avoid going out for fear of having an accident, or you avoid sexual activity. Talk to your treatment team if you are finding it hard to cope with this side effect.

Other changes to your appearance

Surgical scars


Surgery can cause scarring. Sometimes people worry because a scar looks or feels red, tight or uncomfortable. This may make you feel self-conscious, even if others can’t see it. Ask your doctor about creams that may help the scar heal and become lighter in colour. In some cases, you may choose to have surgery to make a scar less noticeable.

Other skin changes


Some targeted therapy, immunotherapy and hormone therapy drugs can cause itchy, red and dry skin. Radiation therapy can also cause skin issues. Skin changes can make you feel self-conscious. Your doctor may be able to suggest creams to help.

Lymphoedema


If most of the lymph nodes are removed from your armpit, groin or pelvic area, lymph fluid may no longer drain properly, and your arm or leg may swell. This is called lymphoedema. This may be permanent, but the pain and swelling can usually be managed.

Stoma


You may need a temporary or permanent opening in the body (stoma) after surgery for some types of cancer (e.g. bowel or bladder cancer). A stoma allows stools (poo) or urine (wee) to collect in a bag attached to your abdomen. The bag can then be emptied. It can take time to get used to a stoma. You may worry that it can be seen under clothing, but it’s not usually noticeable. For more information, see Sex with a stoma.

Ways to adjust to changes in appearance

  • Keep in mind that body image is based on a mix of emotional and physical factors, not just on a body part or physical characteristic.
  • Look at your “new” body in the mirror to get used to the changes, and wear outfits that make you feel good.
  • Ask about reconstructive surgery, prosthetic devices and/or cosmetic solutions. These are not for everyone, but may help improve self-esteem and body image.
  • Exercise regularly. It can help improve body image and quality of life. An exercise professional can tailor an exercise program for you.
  • Connect with people who have similar experiences through social media or LGBTIQA+ support groups. They may have tips for adapting to body changes.
  • Talk to your GP or a psychologist if you have trouble adjusting.

For more information, see Living well after cancer.

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