Life after treatment for cancer of the uterus

Adjusting to life after treatment

For most people, the cancer experience doesn’t end on the last day of treatment. Life after cancer treatment can present its own challenges. You may have mixed feelings when treatment ends, and worry that every ache and pain means the cancer is coming back.

Some people say that they feel pressure to return to “normal life”. It is important to allow yourself time to adjust to the physical and emotional changes, and establish a new daily routine at your own pace. Your family and friends may also need time to adjust.

Cancer Connect 13 11 20 can help you connect with other people who have had cancer of the uterus, and provide you with information about the emotional and practical aspects of living well after cancer.

Follow-up appointments

After treatment ends, you will have regular appointments with your specialists to monitor your health, manage any long-term side effects and check that the cancer hasn’t come back (recurred) or spread. If you have a low risk of recurrence, your follow-up care may be shared between your cancer specialist and GP, or you may be discharged to your GP with easy access back to your specialist if needed.

During check-ups, you will usually have a pelvic examination and you may have imaging scans. Follow-up appointments will start immediately after treatment, then become less frequent over time. How often you see your doctor will depend on the type and stage of the cancer.

When a follow-up appointment is approaching, many people find that they think more about the cancer and may feel anxious. If you are finding this hard to manage, talk to your doctor or call Cancer Council on 13 11 20.

What if the cancer returns?

For some people, cancer of the uterus does come back after treatment (called a recurrence). This is why it’s important to have regular check-ups and to immediately report any symptoms (e.g. vaginal bleeding, pain in the abdomen, swelling, unexpected weight loss, unexplained cough), rather than waiting for your next follow-up appointment.

Most cancers of the uterus that come back do so in the first 2–3 years after treatment. If you have had a hysterectomy, cancer of the uterus usually comes back in the vagina or pelvic lymph nodes. It is also possible for the cancer to come back in another part of the body. If the cancer does recur, you will usually be offered further treatment to remove the cancer or help control its growth.

Dealing with feelings of sadness

If you have continued feelings of sadness, have trouble getting up in the morning or have lost motivation to do things that previously gave you pleasure, you may be experiencing depression. This is quite common among people who have had cancer.

Talk to your GP, because counselling or medication – even for a short time – may help. Some people can get a Medicare rebate for sessions with a psychologist. Cancer Council may also run a counselling program in your area.

For information about coping with depression and anxiety, call Beyond Blue on 1300 22 4636. For 24-hour crisis support, call Lifeline on 13 11 14.