Overview
The neuroendocrine system is made up of many glands and nerve cells that produce hormones. Neuroendocrine tumours (NETs) are a rare group of tumours. They are also called neuroendocrine neoplasms (NENs).
NETs develop from neuroendocrine cells that become abnormal and keep growing. The fast-growing (high-grade) tumours are also called neuroendocrine carcinomas (NECs) or neuroendocrine cancer.
A NETs diagnosis can be a shock. Find helpful information in Just diagnosed, or call Cancer Connect on 13 11 20 to talk it through with our qualified professionals.
What's in this fact sheet
About neuroendocrine tumours
NETs can start in different parts of the body. Gastrointestinal NETs start in the digestive system, pancreatic NETs in the pancreas, and lung NETs in the lungs.
Symptoms and risk factors
Learn about symptoms and risk factors for NETs. Symptoms depend on where in the body the tumours are found, but it is common to feel tired or lose your appetite.
Diagnosis
NETs can be difficult to diagnose. You are likely to need a number of tests. These could include blood tests, imaging scans, endoscopy and echocardiograms.
Treatment
Common treatments for NETs include surgery, chemotherapy and other drug therapies, radiation therapy and radionuclide therapy.
Managing side effects
Different treatments have different side effects. Common side effects include fatigue, appetite loss, nausea and bowel and bladder changes.
Life after treatment
Explore ways to look after your physical and emotional wellbeing, during and after treatment.
Questions for your doctor
It can be a good idea to prepare a list of questions before your appointments. See our list of questions about NETs treatment and care.
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